Independent Living Words of Power: Comments to the ILA

In preparation for the CILs’ administrative move to the the Independent Living Administration at the Administration for Community Living at the Department of Health and Human Services, we wrote expanded definitions of key words used in the Workforce Innovation & Opportunity Act. The advocates who created Centers based on IL philosophy would be disturbed at the current “re-interpretation” of their words by Michigan CILs. Please send your comments to add or edit the definitions.

Language: conveyor of philosophy and culture 

Significant Disability: The Act repeatedly says “significant disability” to distinguish it from the broader term “disability” and focuses the services and resources on the individuals who have historically been the most segregated and least independent. They, people with significant disabilities, are the most qualified to direct and deliver IL services, because their lives depend on the same systems, and they have developed a skill set interacting with systems that will empower others.

Consumer: For the purpose of the Rehab Act Title VII, consumer means a person whose ability to be independent in the community, in their home, or at work, is substantially reduced by a mental, physical, sensory, developmental or other significant disability. Consumers with significant disabilities use equipment or other accommodations that support access and participation at home, the community, and employment. Consumers frequently have personal experience utilizing the publicly-funded systems intended to support the Disabled. Systems are often designed to be person-centered, but too frequently keep the Disabled poor and dependent. This knowledge and experience is necessary for the provision and administration of core services.  Continue reading

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